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Can I Raise A Child With Special Needs?
By Tom and Sherry Bushnell
Every parent thrust into the world of disability asks this question. A
feeling of confusion, helplessness, life spinning out-of-control or being pulled
in a direction unwanted is normal.
15 years ago when our daughter, Tally, with Down syndrome was born, we were
totally ignorant of the fact that were about to go through the most
life-changing incident in our lives. Down syndrome came as a surprise to us. She
was born at home. We had a wonderful birth. We were well on our way to our
idyllic number of children (3 boys and 2 girls).
Our little home had 2 days of after-the-birth bliss until our midwives’
suspicion led us to the pediatrician. Not only did Tally have Down syndrome, but
she had a good sized hole in her heart needing repair right away. We were not
too concerned about dealing with disability at this point. We just wanted her
alive. She had to gain 3 pounds before they would consider surgery to "fix" her
heart. 3 months later, after a constant struggle getting her to that important
weight, we were ready to get done with surgery and move on in life.
God had other plans. Several hours after open heart surgery, Tally died.
Our beautiful fragile flower was gone.
It took 3 years for both of us to come to a point of complete surrender
realizing that this is what God had intended all along. This is the path that He
choose for us. Not our will, not our comfort, but His plans. We are willing to
walk in His way.
The outward signs of our surrender are apparent. We are happier. Inside we
are resolved to have the number of children He desires for us. We also realize
that special needs children are precious in His sight. Each one deserves a mommy
and a daddy. Thousands and thousands of special needs children like Tally are
aborted each year. If we were not allowed to raise our own special needs child,
we wanted to adopt.
So, what does it take to raise a child with special needs?
Simply a willingness to do exactly what God wants. Which part of our lives
should we keep for ourselves? Our privacy, our time, our finances, our looks,
our reputation, our hobbies, our ability or gifts?
Do you long for real joy? If we truly fear and love God, all of the
things that are important to us should be on that alter. He alone can turn our
sacrifices
(a sacrifice is something we give up that is precious to us) into
satisfaction and even comfort to our souls.
What is ahead? Our limited minds cannot comprehend. The little decisions we
make to obey or not obey, to put aside our bitterness and fear and trust the
Lord, these serve as spring boards for His perfect will in our lives. We may
never know how our obedience or disobedience affects those around us forever.
Heaven or hell? Our decisions are important. Should we keep a baby with a
poor prognosis with a future of disablity? Should we adopt a child that has
disabilities? Can we give a financial gift to help a family adopt a disabled
child that would otherwise be aborted? Our decisions make an incredible
difference. This is called storing up treasures in heaven. When our lives are
done (our lives are very short in comparison to forever) we all want to have our
Heavenly Father say, "Well done my good and faithful servant".
Do you have fears about taking care of a child with disability? We will be
honest. We do too. The world of brokenness is really difficult to weave through
without somehow hurting too. Have you asked these questions?
Are we doing all we can to help our children?
It is easy to feel over-whelmed when looking at a child that needs
multiple areas of therapy and other professional help. Especially if we do not
have the expertise to do it ourselves. We believe that our children are a gift
from God. He can give us the knowledge, patience, endurance and hope we need to
meet the needs of our children. We can become experts on our children by
educating ourselves. Do you believe that each day is given to you by Jesus to
serve Him? Can we believe that He will order our days? Won’t He will enable us
to do all we can for our children?
Isn’t someone else more capable than we are?
Yes. There will always be someone more qualified to do a better job. But the
fact remains, that if we know that the Lord has called us to raise our special
needs child for Him and the public school or government programs cannot meet
those goals, we are the best ones to teach our child.
Isn’t it cruel to allow our other children to suffer along with our disabled
little one, or for their sakes?
From a Biblical perspective, suffering for the sake of the good or well being
of others is not a bad thing. From a worldly perspective, special needs pre-born
babies are better off dead. The Bible says that even the kind mercies of the
wicked are cruel. (Proverbs 12:10b)
Our family chose to include disabled children in our home to help us all gain
a more heavenly perspective here on earth. Our treasures are our children. They
are about the only earthly blessings we can take with us to heaven when we die.
(They may come a little later!)
What will our relatives think? Will our friends reject us?
If God has called us to raise a child that is unpleasant to look at or be
around, we can rest assured that someone will call us on the carpet for
"ruining" our lives. Do you feel folks around you are repulsed by your child?
Well, our family is replused by folks who are more interested in selfish desires
and pleasantries than rolling up their sleeves and helping. If we have to make a
new set of friends, thank the Lord we are gaining better friendships. (It still
hurts.)
How can we add one more detail (especially one so large) to our already busy
lives? Adopting or raising a birth child with special needs takes incredible
time and patience we just don’t have.
As the old saying goes, "if you want something done, ask someone who is
busy". The Lord knows which details should be priorities in our lives. There is
never enough time for some things in our home. Time enough for reading lots of
books to the children, time enough to cook fabulous meals every night, to sew
all our own clothes, to volunteer our services to worthy organizations, the list
goes on. In our home we must prioritize and ask ourselves this question. "What
is God calling me to do? and "What is God wanting me do to right this minute?"
In our home, God allows us to see a balance between the good and the best. We
ask people we trust their opinions, we read the word and seek to communicate in
a real way with our spouse, children and parents. Are we all at peace? Are we
willing to let go of some things to replace them with an new goal or priority?
One of the phrases that we hear, (and I know that folks mean well) is this,
"You are such wonderful parents to have God choose you to have a child with
special needs."
To be honest, we do not feel very wonderful. We are normal to the core. In
fact, there is nothing more disheartening to know that we are being put on a
pedestal we don’t belong on.
God alone knows the joy, worry, frustration, secret fears and embarrassment
that comes with tackling the job He has chosen for us. Being a missionary is
noble, saving lives as a doctor is noble, rescuing a drowning person is noble,
but dedicated motherhood and fatherhood is just as noble. Those quiet prayers,
tear soaked pillow in prayer.... this is noble!
Some folks are quick to praise and then pronounce that they could never
have the patience or heart to raise a disabled child.
Is this because God is calling these well-meaning families to actively
participate in saving the lives of broken children and they are not sure how to
help?
Children are being abandoned before birth by the milions. The need is greater
that any one of us can ever hope to cure by ourselves. The important thing is
that we are obedient to God’s quiet voice. What part of preventing the death of
special needs children is God calling you?
Are you willing to give an imperfectly made baby life, to be raised in love
by you or another mommy?
Adopting a baby that would otherwise be lost, into your home, as one of your
own is a ministry that God loves. After all, He adopted us!
Can you share financially with what God has given you to support another
family or a ministry actively saving babies?
There is no greater love than this, than laying down our life for others.
God does not promise us a wonderful life full of comforts and pleasures. He
does promise pure joy when we obey Him. With God’s help we can do all
things He calls us to do.
Can I raise a child with special needs?
Let’s re-phrase that:
Is God calling me to do this?
The Lord gives strength when we are weak, wisdom when we feel inadequate,
patience when we are ready to pull our hair out (or the hair of our child) and
pure joy in the midst of tragedy.
None of us are ever perfectly ready to raise a child. Fellow Chrisitans that
have walked in your path are waiting to encourage you through NATHHAN.
We would not trade raising the children God has given us, including our
special children, for any other walk in life.
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