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Letters From Moms

Last edited on 11/06/2008

 

 

Dear Friends,               

  Here is a picture of our precious daughter, Sabrina Joy. She has Down syndrome and was one of the first babies placed through CHASK. Some of you may remember us from a past issue in the NATHHAN NEWS or in the update letter that CHASK sends out to its families.

  She is now 19 months old.  She weighs a little over 22 pounds and is 26 inches long.  She is tube fed still and does very well on our goat milk.  I also tube feed her carrot juice and some baby food.  We are working with a therapist to help her feeding problems.  She had surgery in October to remove her adenoids which were blocking her breathing by almost 100 % we were told.  She also has problems with reflux.

  Sabrina belly crawls or rolls where she wants to go.  She does not get up on all fours to crawl yet.  She says da-da and some other sounds.  She has just learned to sit up.  She loves music and any paper she can get into.  While we do school at home, she likes to empty the book shelf with the encyclopedias on it.  A book worm in the making!

  Nathaniel our oldest son (15) and Sabrina are best of buddy’s.  He really looks out for her.  It has been good for him.  It’s like they have things in common.  Rebekah  (14) loves to baby-sit her sister.  She tries to teach her new things.  Wendel (11) plays with her and tells her how beautiful she is.  They all include her in their board games, even though she doesn’t know what is going on.  They even have her winning the game!

 We are really enjoying our daughter.

 Mark and Wendy  Carper and Family

 Greenville, PA.

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December 21, 2005

 

    My oldest daughter, Donna and her husband have 3 children. Kelsey Anne who is the third was born with Down Syndrome and it's accompanying heart defect. but she has been a wonderful gift from God. She had her heart repaired at a Children's Hospital in Denver when she was 3 1/2 months old and now has a clean bill of health. She will be 2 in February and is such a joy to our family. She has an angelic smile that draws even strangers to want to talk to her. She is so active, and a vital part of our whole family. Of course, her Grandma and Grandpa think she is just so precious. Her 8 year old sister and 5 year old brother adore her and play with her all the time, and she loves them. She is very high functioning and NO ONE HAS EVER TOLD HER SHE IS ANY DIFFERENT FROM THE REST OF THE FAMILY OR TREATED HER DIFFERENTLY. So she is very happy and adored by all of us. I can't imagine anyone who is knowledgeable about Down Syndrome aborting their baby.

    Our other daughter, Kristy and her husband have to adopt children. They have currently have a son who was 2 in September and just last week received a new born son. But on August 22nd, they had been chosen by another young couple to adopt their yet to be born child. The mother went into labor the very next day and gave birth to a little girl who had severe physical birth defects. The child was flown to Denver and was not expected to live through the night. My daughter and son-in-law immediately went to the hospital to be with her so she wouldn't be alone. But the diagnosis was wrong and she was found to be healthy except for her physical defects. They spent 10 hours a day for 6 days at the hospital with her, agonizing over whether they could deal with her critical needs since they have such a young child at home already. It was a terrible time for our whole family. But about a year and a half prior to the birth of this child, I had been told about your organization by a friend and had started to send you donations. I gave that information to Hope's Promise, the Christian adoption agency they go through in Castle Rock, CO and they contacted you. This infant girl was adopted by Sally in Wyoming. How amazed I was when I recieved your magazine to find that "Summer Joy" was on the front page. God, indeed, works in mysterious ways to accomplish HIS will. Kristy and Sally have written back an forth to each other.

    I am so glad your organization is there for special needs children who need loving homes.

    Sincerely,

Nancy and George Hollen   

 

 

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A special letter from Linda Craig, who had a baby born with Down syndrome.  What an encouragement to read about her experiences!

 

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 First let me introduce myself.  My name is Shannon and my daughter's name is Keyana.  Being a teen mom is hard, but luckily I had and have my family and my boyfriend, the baby's father.

           Making the choice to have my child was an easy decision because I thought..."Why kill my baby when I was the one who had unprotected sex."  Having Keyana has changed my life.  Now I have a different lifestyle.  I have grown up a lot too.  My child and I have the greatest bond ever.  I couldn't ask for anything more. 

    Being scared is O.K.  Just remember that having life growing inside our body is a precious thing.  -------Shannon, Bremerton, WA

 

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Dear Birth Mom,

                My sister has a son with Down syndrome. When she was pregnant, the doctor wanted to test her for that possibility, but she said no, because she would never accept an abortion. Timothy is now nearly 13. He is delightful and loving, and he is very bright. He has a phenomenal vocabulary and he can have a good discussion with me. He has memorized hundreds of songs and has earned several medals in Special Olympics.

            My sister and her family know that God sent them Timothy for a reason. He has drawn them together, and has helped bring about much needed love between the other members of the family. Because of him, my sister has reached out to many families who need help with their special children, and she has been a real blessing to many people. Children with Down syndrome are such a blessing that I wish God had given me one!  I have raised two adopted children and one of them had a learning disability. He is a fine young man who has saved many lives as a paramedic. My other adopted son is the most gifted musician I have ever personally known. Both sons are mixed race, and this meant that our family became mixed race also. We have five other children, and the family is very close.

            Your baby can be a blessing to you or to someone else. God has a plan for your baby, and your baby is a blessing. You may not feel that way right now, but eventually, you will understand. Sometimes understanding takes time. The Lord bless you, please write me if you need someone to encourage you. 

Pat Goltz      pgoltz@nexiliscom.com
 

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The story of the Smyth family, adopting Cody a little boy badly burned and scared for life,  from the Shepherd's Crook Journal

 

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Dear Birth Moms,
  I am the parent of a special needs child and advocate.  My daughter Stephanie was born with end stage renal disease (renal agenesis {missing right kidney}, renal dysplasia {left kidney not full size, not fully functioning, misplaced} and Grade IV bilateral vesicoureteral reflux {back up from bladder to kidney}).  All prenatal tests were normal.  She ended up breech, early, emergency C-section and went into respiratory distress.  She spent her first 2 weeks in neonatal intensive care at Children's Hospital of Philadelphia and was not expected to survive even the first day.  She will be 12 next Monday.  I'm glad I didn't know anything was wrong beforehand
because I didn't have to make any tough decisions but I know I would've kept the baby no matter what - I had told my husband if any of the tests came back indicating problems that was just too bad and it wouldn't make a difference.  Ironically, I had a special education background and my husband works for the urology division of a medical company so we had access to medical databases.  During my research I found that "professionals" had recommended terminating pregnancies of fetuses with less serious kidney problems; the parents were being told that the baby wouldn't live so they thought they were doing the right thing.  I know that if my child survived all those other babies would have made it.  Additionally, when my daughter was 7 she was also diagnosed with autism.  We have our challenges but because of her I became an advocate to help other families in the same situation.  I quit my Fortune 500 job and am now doing something much more fulfilling.  I've done things I never imagined as a shy person that I would:  presentations to 600 people, articles in magazines and books, TV, etc.  She changed my life and is my inspiration.
Lauren Agoratus
parent
NJ Coordinator Family Voices
(National grassroots network speaking on behalf of children with special needs)
35 Kino Blvd.
Mercerville, N.J. 08619
(609)584-5779 phone/fax
Email Agoratus@cs.com